What is “voluntariness” and why is it essential to ensure ethical data collection? What is “informed consent” and why is it essential to ensure ethical data collection?

Notebook Entry: Diversity and Equity in Science Education

There are questions to be answered by watching videos and reading articles. This is an article, https://www.powerschool.com/blog/pedagogy-in-education-more-than-just-a-buzzword/ This is a video: We Need To Talk About Diversity in Science.

This is an article https://news.stanford.edu/2019/10/14/science-lessons-different-lens/ This is a video Science’s Role in Fighting Racism. This is a video, The Immoral Cells of Henrietta Lacks This video Henrietta Lacks, the Tuskegee Experiment, and Ethical Data Collection. Use the videos and articles to answer the questions that are in the link. Each question needs to be at least 2 paragraphs.

1. Consider this quote from the resources: “Science was born out of whiteness.” What does this mean?
2. How has false science been used throughout history as a weapon to diminish the rights of humans?
3. Describe “the diversity paradox.”
4. Why does representation in science and science education matter?
5. What does Dr. Joseph Graves mean when he says, “Our species doesn’t have biological race”?
6. What is pedagogy and how does this influence your method of instruction?
7. How were you impacted by language and culture in your science education?

Summary

Notebook Entry: Ethics in Science
1. Who was Henrietta Lacks? Briefly describe the controversy related to using her cells for science.
2. What makes Hela cells unique compared to regular cells? (Why are they called immortal?)
3. List 4 discoveries that have been made using Hela cells.
4. What is “voluntariness” and why is it essential to ensure ethical data collection?
5. What is “informed consent” and why is it essential to ensure ethical data collection?
6. What is the Nuremberg Code?
7. Describe the concern about ethical data collection in the age of technology.
8. What else did you find interesting or surprising about the ethical information presented in this module?

What is “voluntariness” and why is it essential to ensure ethical data collection? What is “informed consent” and why is it essential to ensure ethical data collection?
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